New Diagnosis

Learning to deal with my epilepsy has been a exciting journey. I have only been through two different medications so far and i have been told that i am a lucky person, most people have to go through many trials and errors so i feel blessed as far as that goes. But i have been hit with another diagnosis that hit me like a ton of bricks, i seriously went in to the doctor thinking i had a build up of scar tissue from my many stomach surgeries and was referred to a surgeon and came out with a diagnosis of "neuromyolgia" an nerve pain disease, it really bothered me. Although earlier this month my husband and i went on vacation to Walt Disney World and literally did four amusement parks in three days and i survived, with minimum amount of pain. Of course i'am on daily medications for my pain. I just ask anyone out there that actually reads my blog continue to pray that my pain stays at this level, cause i'm not a hero when it comes to pain.

I'm back!

Well many months have passed since i have blogged, not that anyone besides my sister reads this. But any how, It has been 5 months since my diagnosis and im on meds and maxed out on the doseage due to awful headaches. Although i have to said i have still had them everyday, but dont want to change meds and then not drive again for two months or more to get it in my system.
 New things that have come into my life; my son moved in from California. A little hard for him getting use to being at home again and the drastic change in weather. But my hubby and i are not use to have to drag someone with us everywhere we go. We snuck out the other day and went to get haircuts and color, sad that was the only time we have been alone, together for awhile now, and it had to be in a salon with tons of people.
  Today is Easter sunday and i feel like i have been cooking all day, not sure this is what God intended. But i made Brunch this afternoon, then made my first ever apple crisp, then started the ham, potatoes and brocolli w/ cheese sauce. So glad it is over, been trying to relax. Will try to keep updated on here better.

Peace out!

Friends

 I discovered today that sometimes you meet people that you never think would be there for you. And then there are the ones that say they will always be there for you and are never there when you truly need them. I have been selling Avon for almost three years and have met several people that have became good customers, But Denise was one of my customers that i felt was more like a friend. When i first started selling to her i was a little annoyed that she always wanted me to sit with her and go through the books from cover to cover and then she would order, but during the last almost three years i have learned that she is really sick and now is no longer able to work and is at home alone most days alone. It broke my heart to tell her that with my new diagnosis i would no longer be able to sell Avon, She was disappointed but tried her best to make me feel better about doing what was best for me. Through our time together i have been the one taking her to emergency appointments and to the grocery store when she just couldnt do it, but now i find myself relying on her. She was so sweet today when she came and picked me up to go to lunch and she offered to take my daughter to work so she didnt have to walk. We had a great time today and i'm really glad that i allowed my self to get out there and meet people when i was new in this area. Every person is placed in your life for a reason and i think that Denise was placed in mind to help me learn to live life like there is no tomorrow!!Thank you lord for all the people you have put in my life!

Life on this snowy planet!

Woke up this morning at about 5:30 a.m. to hear the plow truck going up and down the street, got up and looked out the window and saw nothing but a white blanket covering anything. Yesterday was a pretty nice day, but the weather man kept saying it was gonna slam us and boy did it!! Hubby didnt feel very well this morning so he only cleared part of the driveway, so im sure i will be out there trying my best to clear more of it. Really wishing i was in the bahamas or somewhere warmer today!!

Well yesterday was the day that i had been dreading for a long time. Went into the Neurologist and got my diagnosis of Epilepsy, at first i creid after he left the room. My husband was with me, and was trying his best to keeping from crying, but the tears just came. The nurse came into the room and asked if i was ok after seeing my tears and Ben just told her that i didnt like the news i got. So now i started the medication lastnight and will not be able to drive for two months, until the medication builds up in my system. I'm gonna try to focus on just trying to get rid of this infection i have now and get all better and then when iit warms up i will start walking with Chica, just to get out of the house. It is all up from here!

This just plain sucks!

Friday evening i felt my gums start swelling, thought that perhaps i was having an allergic reaction, so i quickly took two Benedryl and i noticed i really wasnt getting much relief but i tried to sleep. Around 2:30 a.m. i woke up because of an awful taste in my mouth and pain, i noticed that not only was the swelling not going down but was getting worse. So i called the advice nurse, and she placed the Emergency Room doctor on the phone he said i needed to come in sounded like an abscess to him, but that his associate would take a look at me. I got there and checked in, they took my vitals and the doc walked in looked in my mouth for about 10 seconds told me he was going to give me a heavy duty antibiotic and pain meds and wanted me to see my dentist on Monday, he thought it was an abscess tooth. So they gave me the antibiotic to take there and i drove back home and attempted to sleep. Woke up Saturday morning and didnt feel much better, in fact it felt like  the swelling was now in the back of my throat. But had things that needed to get done, so i sucked it up and went to lunch with Ben. Came home after getting prescription filled and took pain meds and laid down to rest. Sunday morning came and i tried to get up and get going and my body just didnt want to do anything but sleep, but had to do errands, so again sucked it up and got moving.
Monday morning i called the dentist office and they got me in right away, amazing what the word "abscess" does for opening his schedule. So i go in they take xrays and even do a panoramic, because he says he doesnt want to miss anything. But none of them show anything wrong with any of the teeth, so he comes to the conclusion that this is a viral infection, because im very susceptable to getting fever blisters. And he tells me that the antibiotic will do nothing for a viral infection to stop taking it. So i send Ben a text letting him know what he said and he insisted that i make an appointment with my doctor, so i called and i couldnt get in with my doctor, but got into see her P.A., i went in at 4 and told her about the ER vist and the DDS visit and she looks at me and doesnt like what she sees, Then she goes into my file on the computer and notices that in December when i had the MRI with contrast that it showed a inflamation in my right mastoid area, which she thinks is where this infection is coming from. She told me to go back on the antibiotic and to have bloodwork done, to see if my white blood cells are increasing or decreasing. Should they be decreasing i would need to add another antibiotic to the mix. Which brings us to today, Tuesday and im actually swelling more in my collar bone lymph nodes, and not feeling much better at all. Sent a message to the P.A. waiting to hear back to see what she wants me to do. And tomorrow is my appointment for the neurologist so hoping for the best!! Just wishing it was all over with!

And the story continues

One week from today i will see the Neurologist again and find out what his plan is. Everyone from family to friends have been telling me to get a second opinion, but im beginning to feel like that is just going to drag out the final results, which is im sure gonna be the diagnoses of Epilepsy. Just so unsure about everything,Im not sure if i want to fight the doctor on this or just follow his instructions and possibly lose my license for two years. I really just hope that this all turns out the best possible for everyone concerned!

Update to come in one week.....